Funding Opportunities

The Patient-Centered Outcomes Research Institute (PCORI) is issuing a Topical PCORI Funding Announcement (PFA) seeking to fund high-quality, patient-centered comparative clinical effectiveness research (CER) projects that focus on people with intellectual and developmental disabilities (IDDs). For this PFA, developmental disabilities (DD) are chronic disabilities that originate at birth or in the developmental period and result in differing levels of support in physical, learning, language and/or behavioral areas. Intellectual disabilities, which fall under the umbrella term of DD, involve differences in cognitive function (i.e., reasoning, learning, problem solving) and adaptive behavior. Data estimate that 17.8 percent of U.S. children and adolescents and approximately 0.5 to 1.5 percent of U.S. adults have an IDD diagnosis, impacting 7 to 8 million Americans. Compared to people without IDD, a higher proportion of people with IDD have co-occurring physical and mental health conditions and unmet healthcare needs. Several health-related social and environmental barriers are associated with a lower level of participation in school, work and play for people with IDD. PCORI recognizes the variety of terminology used within the disability community, including both person-first (i.e., people with disabilities) and identity-first (i.e., disabled) language.